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information & support for patients & carers | support for people with aspergillosis skip to main content support for people with aspergillosis living with it working with it treating it main menu home nac reports your profile aspergillosis abpa allergies cpa fungal sinusitis invasive aspergillosis keratitis onychomycosis otomycosis severe asthma with fungal sensitisation - safs what is aspergillus? diagnosis aspergillus website immune system treatment antifungal medication aspergillus website haemoptysis herbal supplements - what works? reporting side effects steroids nebulised amphotericin keeping well airborne spore report uk air cleaning plants air conditioning units anti-allergen products antifungal drug interactions breathlessness sex and breathlessness chronic pain dehumidifiers end of life face masks food allergy gardening homeopathy i am really sensitive to some smells information leaflets insects/fungus crawling on my skin marijuana use and aspergillosis – patient’s website recognising & avoiding depression smartphone apps staying healthy in your home stopping smoking stress tips to avoid respiratory infections travel your lungs and exercise multiple chemical sensitivity (mcs) get involved epap: help everyone understand greetings cards in aid of fit healthy lungs for life (elf, ers) damp homes is damp bad for us? damp prevention health hazards from damp toxic mould support blf helpline & benefits advice community booklets newsletters patient's stories (video & written) written stories q & a forum (sponsored by fit) support for carers video resources & patient interviews meet face to face support meetings local to you nac patient meetings live online nac patient meeting recordings patients meeting - lisbon 2018 patients meeting - manchester 2016 patients meeting - rome 2010 meet online forum facebook communities nhs choices aspergillosis community yahoo! communities zoom group news & blogs general interest (video/audio) register/login information & support for patients & carers submitted by gatherton on fri, 2013-03-01 17:35 welcome world aspergillosis day feb 1st: caring for our carers once a year we will highlight an issue we think needs more attention. this year is the first year and we have chosen a group of people who play a vital role in the lives of everyone associated with managing aspergillosis: the carers and of course wider family groups who are all affected by this disease. more details... aspergillosis if you are reading this for the first time it probably means that you or someone you are supporting has a suspected or confirmed aspergillosis. there is a lot of information on aspergillosis available on the internet and some of it is alarming, so we should start with the following: there are several different types of aspergillosis , all of which are treatable and it is only acute invasive aspergillosis that needs urgent treatment. you will have many questions about what happens next but let's start with the most obvious ones first. how do my doctors find out which form of aspergillosis i have (if any)? diagnosis x-ray or ct scan following a detailed case history analysis. blood and sputum tests or a bronchoscopy may be carried out. more details... treatment a combination of steroids and antifungal medication is usually used. for more details on symptoms, treatment and prognosis go to one of: abpa cpa ia sinusitis check your drugs for interactions with other drugs in our new database maintenance regular check ups may be needed at first, but once your condition has stabilised these should get less frequent. more details... carer/friend aspergillosis is a long term illness and support is important, both emotional and practical. more details... patient meetings (uk) informal patient meetings are held at the national aspergillosis centre at the university hospital of south manchester on the first thursday of each month. more details.. recordings of meetings we record sound in all meeting and then use it to present the slides used - it is as if you were there yourself! a new one will be added each month. other recordings how to use nebulised amphotericin from jack gallagher (university of manchester medical school) a useful video from our specialist physiotherapist giving tips on how to produce a sputum sample when requested. our specialist physiotherapist giving tips on breathing techniques and importance of exercise for patients with aspergillosis our specialist nurses present a 'virtual clinic' to simulate a visit to national aspergillosis centre patients and carers who attend the national aspergillosis centre talk about their experiences. visit the videos from the aspergillosis for patients meeting in rome, feb 2010. tags: diagnosis treatment steroids antifungal drugs abpa cpa ia sinus x-ray ct scan blood test sputum bronchoscopy 0 share share on facebook share share on twitter tweet share share additional information aspergillus is a common fungus found throughout the world, spread by microscopic spores which float in the air. we all breathe them in most of the time but most of us have efficient immune systems that kill the spores. some people do not manage to kill all of the spores; sometimes because they are undergoing treatment that suppresses their immune systems (e.g. transplant patients, bone marrow transplant recipients), but sometimes because they are genetically susceptible (e.g. some asthma sufferers) or possibly because they have breathed in many more spores than is usual. they develop aspergillus infections, known as aspergillosis . there are several types of aspergillosis which we go into in some detail here , but briefly there is: allergic bronchopulmonary aspergillosis (abpa) you have a fungal infection deep down in your lungs. this irritates the lung tissue and causes scarring. the infection is treated with antifungal medication and the inflammation and scarring is reduced using steroids. more... chronic pulmonary aspergillosis (cpa) your lungs have been damaged in some way in the past (e.g tuberculosis) and the fungus can grow in the effected area. sometimes it grows as a fungal ball (i.e. aspergilloma) in the cavity. sometimes several cavities are involved (ccpa). more... invasive aspergillosis almost exclusively effects very highly immune suppressed people e.g. transplant patients, bone marrow transplant recipients. must be treated very urgently which is why this group of patients are retained in hospital during the danger period of their treatment. more... aspergillus sinusitis chronic aspergillus infection of the sinuses. still controversial but an increasingly accepted diagnosis. more... tags: aspergillus aspergillosis asthma allergic bronchopulmonary aspergillosis chronic pulmonary aspergillosis 0 share share on facebook share share on twitter tweet share share recent content skype group is now the zoom group gatherton why do we get seasonal allergies? when our immune system goes rogue. nacpatients creative writing projects at the national aspergillus centre - caroline hawkridge - march 2013 anonymous (not verified) patients & carers support meeting - july 2011 anonymous (not verified) patients & carers support meeting - london - june 2011 anonymous (not verified) 20th anniversary meeting of the fungal research trust - astrid leck - june 2011 anonymous (not verified) patients & carers support meeting - may 2011 anonymous (not verified) patients & carers support meeting - nichola duddy - april 2013 anonymous (not verified) 20th anniversary meeting of the fungal research trust - sue howard - june 2011 anonymous (not verified) 20th anniversary meeting of the fungal research trust - david denning - june 2011 anonymous (not verified) 0 share share on facebook share share on twitter tweet share share text size current size: 100% google translate select language english afrikaans albanian amharic arabic armenian azerbaijani basque belarusian bengali bosnian bulgarian catalan cebuano chichewa chinese (simplified) chinese (traditional) corsican croatian czech danish dutch esperanto estonian filipino finnish french frisian galician georgian german greek gujarati haitian creole hausa hawaiian hebrew hindi hmong hungarian icelandic igbo indonesian irish italian japanese javanese kannada kazakh khmer korean kurdish (kurmanji) kyrgyz lao latin latvian lithuanian luxembourgish macedonian malagasy malay malayalam maltese maori marathi mongolian myanmar (burmese) nepali norwegian pashto persian polish portuguese punjabi romanian russian samoan scottish gaelic serbian sesotho shona sindhi sinhala slovak slovenian somali spanish sudanese swahili swedish tajik tamil telugu thai turkish ukrainian urdu uzbek vietnamese welsh xhosa yiddish yoruba zulu search form search latest additions title why do we get seasonal allergies? when our immune system goes rogue. patients meeting may 2018 functional medicine: treating depression patients meeting april 2018 food for thought - healthy eating pages 1 2 3 4 5 … next › last » patient & carers news why do we get seasonal allergies? when our immune system goes rogue. functional medicine: treating depression food for thought - healthy eating what went on at the patients' meeting in lisbon world aspergillosis day - a recap beautiful cure: harnessing your body’s natural defences world aspergillosis day 2018 – 1st feb 2018 patients meeting at the 8th aaa, lisbon 2018 new research explores fungi in the lungs of patients and non-patients stay active to stay young more patient & carers meetings patients meeting may 2018 patients meeting april 2018 patients meeting march 2018 patients meeting 8th aaa, lisbon february 2018 patients & carers meeting january 2018 ask the doctor support ask the doctor read more fit supporters www.fit.care get involved in awareness and fundraising www.facebook.com/groups/fasfi/ sell on ebay patients tips get help coping with the many problems. an a-z compiled by the aspergillus trust - written by patients for patients facemasks support for aspergillosis patients and carers home aspergillosis diagnosis treatment damp homes contact support immune system keeping well fund raising news disclaimer privacy/confidentiality cookies terms and conditions advertising premium drupal themes

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aspergillusblog.blogspot.co.uk
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antifungalinteractions.org.uk
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